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MAY 2008 PATIENT OF THE MONTH: Clay Trysla AGE 1
Diagnosis:
Clay was found to suffer from primitive neuroectodermal tumor (PNET) in September 2007.

Clay's Story:
Kristin and Patrick describe their precious 1-year-old son as a typical Gerber baby- healthy, happy and alert. His sisters adore him and, like any boy, he's into everything. But in September 2007, Clay's mom became worried when her baby's cheerful demeanor suddenly disappeared.

The little boy became fussy and began sleeping up to 12 hours at a time. Then his left arm went limp and his mother immediately took Clay to the pediatrician. The doctor dismissed her concerns as nothing more than nursemaid's elbow. In spite of her uneasy feelings, Clay's mom took him home. But less than 24 hours later, Clay began throwing up. This time, his parents took him to an emergency room where they learned the devastating news that Clay had an aggressive tumor on his brain. Doctors operated immediately, but were unable to remove all of the tumor. Knowing that their baby's survival depended on getting the best possible care, the family quickly turned to the Internet to research their options. They found St. Jude Children's Research Hospital and Clay's mom prayed for a sign that this was the right place for their baby. The sign she prayed for came the next day, when a friend unexpectedly showed up on the family's doorstep with a St. Jude medallion that had been given to her. Her friend had felt compelled to bring the medallion to the Tryslas. Kristin told her husband, "We need to be at St. Jude. That's where we are supposed to go."

At St. Jude:
Clay had an MRI as soon as the family arrived at St. Jude. Clay's parents were very distressed to find out that the scan showed the tumor had grown back quickly and was larger than it had been before his first surgery at the local hospital. St. Jude doctors determined Clay needed further chemotherapy, followed by a second surgery to remove the tumor. Within six hours of his surgery at St. Jude, Clay was sitting up, smiling and eating. Clay continued chemotherapy, followed by 30 radiation treatments. He is home now and undergoing six months of oral chemotherapy. Clay also receives physical and occupational therapy several times a week.

Kristin believes coming to St. Jude saved her son's life, and she is thankful for the donors who help support St. Jude. "Clay is a miracle," Kristin said. "I can't thank the donors enough because St. Jude is a huge part of this miracle. If we hadn't come here, we wouldn't have him today."

Clay is once again the very picture of a Gerber baby- pink cheeked and bright-eyed. He likes to play with his sisters and watch the fish swim in the aquariums at St. Jude.

Making a Difference for St. Jude Golf event
A Making a Difference for St. Jude Golf event benefiting St. Jude Children’s Research Hospital will be held on 05/02/2008 in Poughkeepsie, NY. The Volunteer Coordinators for this event are Mr. Dennis Naughton Jr & Mr. Michael Cole who encourage everyone to participate.

The event will begin at 8:00 AM at Dinsmore Golf Course, Staatsburg, NY with Dinner and Raffle drawings to follow at the Poughkeepsie Elks Lodge 275 located at 29 Overocker Rd, Poughkeepsie, NY.

The Cost for the event will be $100 per person, plus the cost of raffles.

By participating in or attending the event, you will help raise funds for children of the world who are stricken with diseases like cancer, AIDS, and Sickle Cell Anemia. These funds will help St. Jude in its ongoing fight against childhood cancer and other catastrophic diseases.

St. Jude Children’s Research Hospital is internationally recognized for its pioneering work in finding cures and saving children with cancer and other catastrophic diseases. Founded by the late entertainer, Danny Thomas, and based in Memphis, Tenn., St. Jude freely shares its discoveries with scientific and medical communities around the world. No family ever pays for treatments not covered by insurance, and families without insurance are never asked to pay. St. Jude is financially supported by ALSAC, its fund-raising organization, through events such as the Making A Difference for St. Jude event.

If you are interested in participating or making a donation, please call Mr. Dennis Naughton Jr., at 845-629-4813. For more information on St. Jude Children’s Research Hospital, please visit www.stjude.org.
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GET INVOLVED! - BECOME A ST. JUDE VOLUNTEER

The Hudson Valley Volunteer Group has set the schedule of meetings St. Jude Children's Hospital fundraising and event planning for 2008.

Volunteers are integral to the success of the WRWD Radiothon and other fundraising events throughout the year in the Hudson Valley.

Monthly meetings are held in the Poughkeepsie Galleria Community Room at 7:00 pm. Upcoming dates are as follows:


Thursday, January 10th 
Thursday, February 7th
Thursday, February 21st 

Click Here  To Download The Volunteer Form


For more information, Call or St Jude Children's Research Hospital representative Jessica at 518-453-6800, or toll free 888-453-6800.
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